I've never met a disorder that I couldn't inherit
I've never met a disorder that I couldn't inherit
Health speculation…
I'm still waiting for further appointments and more blood work (and possibly more tests after that). My doctor hasn't said so specifically, but she seems to be looking in the direction of something like #MCAS (#MastCellActivationSyndrome) and my thoughts have been leaning that way too. I had already considered this as a possibility because one of my symptoms is intensely itchy skin. There is a *lot* of overlap between MCAS and #dysautonomia and they can often exist as comorbidities. There are some aspects of what's going on with me that could suggest both, although it's impossible to say anything for sure without specific testing. There are also other things too that can look like MCAS... and I'm really not trying to actually diagnose myself here, I just really, really want to understand what's wrong. I'm so worn out from this and, at times, I've been really scared.
I have been taking a couple of different antihistamines and they were helping the itching and shortness of breath as well as waking up with intense anxiety. But in order to do a blood draw tomorrow, I've had to stop taking these for a few days and last night and today I've really felt the difference and it's been horribly uncomfortable.
I got the results back from my heart monitor and it showed instances of sometimes very high tachycardia, but I haven't spoken to anyone about this yet so I don't know how serious it is. All my doctor has said is that I need to see a cardiologist and that appointment is later this month and I'll see my primary doctor a little before that.
[Me, at my doctor's appointment, trying my hardest not to murder him....but only because I need my meds]
I've said before living with #ChronicIllness feels like death. And sometimes the feeling is spiritual. Every time I get ahead of myself, my body lets me know.
It keeps me humble. It is, in some ways, my keeper.
Happy to say that my intention to not open a news app after 6 pm is really working. I also only have a few news folks that I follow here and have learned to mute them in a rotating order so I get to read each of them, but it certainly limits the amount of news in my feed.
Except news of my friends, which which seems more important anyway.
For now, this is the way.
Who set my symptoms on shuffle?