sfba.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A Mastodon instance for the San Francisco Bay Area. Come on in and join us!

Server stats:

2.3K
active users

#ActuallyAutistc

4 posts3 participants0 posts today
Continued thread

I went quiet because it seemed like I had blown my data limit but I now think it was just the sheer number of people (= phones) in a small area. I have a lot more pics I couldn't send, but summary is that it was immense, we marched down to st James park and there were speeches. I bailed out about 1600 as being typical of my #ActuallyAutistc self, I felt kind of out of place, not able to "interact" and pretty exhausted too. I'm on the train back now, surprised I can even post this as I've been having trouble texting my wife to keep her updated on events....

Continued thread

Made my first change at Wolverhampton, now on a train to Southampton, got to get off at Banbury for the next connection. Hella crowded, got a seat at first but left it because not sure if it was free for long enough to settle down and was feeling penned in, so now I'm shacked out in the luggage compartment. #ActuallyAutistc travel is the best.

I've been thinking about how difficult it is for a lot of autistic folks to have an enjoyable time of the entire sphere of experiences in society which are "go somewhere and pay someone to do something caring for you", e.g. haircut, body piercing, getting your nails done, getting a massage

Mostly because of sensory issues or society being extremely bad at communicating expectations

And it's unfortunate because those are one of the most straightforward ways in this society for a person to just be vulnerable for a bit and feel taken care of

#JournalEverything My turn to make #dinner today. With limited fresh ingredients and various family members having certain "requirements" I opted for my old standby of "stir fry". Mixed veg - broccoli, carrots, sugar snap peas, red pepper, sweet potato and mushrooms. Wife's is with shallot, sweet potato, mushrooms, seaweed, but without noodles, young uns have fat noodles but no onions, sweet potato, seaweed or mushrooms, and I have all in with brown rice noodles and miso. #vegan #ActuallyAutistc #SensoryIssues

[Edit: added photos that I forgot] [edit 2 corrected #AutoCorrupt typos]

I'm really irritated that I can't find a satirical comic that I'd seen a couple years ago, about labelling kids.

The first panel is a group of adults talking about a child, referring to the child as negative labels like naughty, distractible, etc. One adult says "maybe the child is ADHD?" and then the next panel is the other adults shouting things like "no, you can't label children with something like that!" or something to that effect.

Anyone seen this one?? #ActuallyAutistc #ADHD

Bemoaning the bodily functions of Bladder.

And then going "I don't want *feet*" on my way to the bathroom...

Ah yes I am in Fine Form today.

(You know. If that form is Tired and Already On The Edge Of Sensory Nope #ActuallyAutistc. Today is going to be fun.)

(I have not had enough sleep. At all.)

Replied in thread

@mirjanx @actuallyautistic Welcome to the fold. That's a very common story on this hashtag.

You're still YOU - the only thing that has changed is a bit of self knowledge. This rabbit hole runs deep, but the #ActuallyAutistc community are always here if you need to offload, check things out or just chat with like-minded (in a neurological way) people.

The only piece of general advice I can think of that applies to us all is: be kind to yourself. Learn how to stay within your abilities and try to do it.

Peace.

Hey, fellow people on the spectrum, when you do repetitive tasks (like shovelling dirt or sowing seeds or cutting carrot slices), do you usually count the repetitions? I do it subconsciously ever so often and then I become aware that I'm doing it and then I stop counting. Because I feel stupid for counting in my head, when it's not even necessary. Do you usually count repetitions? #ActuallyAutistc

Continued thread

#Autismus kann so sein:
Du hältst dich gerne an Routinen, Strukturen und Regeln, die du als sinnvoll und logisch erachtest. Du kannst nicht verstehen, warum Menschen oft so unlogisch und wenig vorausschauend handeln. Es macht dich geradezu wütend, dass andere so „ignorant“ gegenüber wissenschaftlichen Erkenntnisse sind.
#ActuallyAutistc

Continued thread

#Autismus kann so sein:
Du erfasst Sachverhalte gerne vollumfänglich, andere nennen dich „pedantisch“ oder „perfektionistisch“. Du kannst dich sehr gut in interessante Themen einarbeiten. Wobei „interessant“ für dich eine andere Bedeutung hat, als für die meisten anderen Menschen. Du langweilst sie damit, wenn du deiner Begeisterung freien Lauf lässt. Du fühlst dich unverstanden und noch mehr auf dem falschen Planeten.
#ActuallyAutistc

Continued thread

… maybe that sounds odd.

I grew up being told that I was a failure, a freak, useless. And the inside of my head was a truly strange place. (It was 40yrs until I would be diagnosed #ActuallyAutistc , but that doesn't cover it all.)

Then I made some friends that liked me just as I was. One of them gave me a nickname. And (in a very autistic way) I made the jump to realising: that's right! I get to choose who I am, no-one else!

So I used the nickname. That's all it took to rework my self image.

Autism Research—What’s New in February

ndconnection.co.uk/blog/autism

A roundup by Ann Memmott, topics:

Autistic people decide what’s valid as ways to check for autism

Autistic rapport with groups of autistic and non-autistic people

Self compassion to overcome stigma

Making consent meaningful

Intersectional identities – Black autistic children and young people in special education.

Quality of life for autistic people – who decides?

Central Sensitivity Syndromes and autism are much more closely linked than many realise – a way to improve diagnostic accuracy for both groups?

‘Like it’s making my heart run’: a strengths-based understanding of the play of autistic children

Including autistic people in research – what actually works?

/!\ ABA

Use of Applied Behaviour Analysis and antipsychotic medication to ‘improve symptoms’ of autism.

#autism #ActuallyAutistc @actuallyautistic

Neurodiverse ConnectionAutism Research—What’s New in February — Neurodiverse ConnectionIn this month’s research roundup, Ann Memmott picks out some of the current big debates on Autistic lives, and showcases new and important research from teams and academics working within the field.